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目的:探讨脑性瘫痪(CP)患儿家庭主要照顾者负担与社会支持的相关性。方法:采用Zarit照顾者负担量表(ZBI)和社会支持评定量表(SSRS)对80例CP患儿家庭主要照顾者进行调查。结果:83.8%的CP患儿主要照顾者的ZBI评分处于轻、中度水平。CP患儿主要照顾者的SSRS各维度评分均明显低于国内常模,均P<0.01。CP患儿的Zarit照顾者负担量表总评分与客观支持、主观支持和支持利用度呈显著负相关,均P<0.01。结论:社会支持与CP患儿主要照顾者的照顾者负担密切相关,护理人员应加强其社会支持系统,从而提高CP患儿的照顾质量。
Objective: To investigate the correlation between the burden of family caregivers and social support in children with cerebral palsy (CP). Methods: Eighty cases of family caregivers of CP children were investigated with Zarit Caregiver Burden Scale (ZBI) and Social Support Rating Scale (SSRS). Results: The ZBI scores of 83.8% of CP caregivers were mild and moderate. The scores of SSRS of primary caregivers of CP children were significantly lower than those of the national norm, all P <0.01. The total score of Zarit caregiver burden scale in CP children was negatively correlated with objective support, subjective support and support utilization, all P <0.01. CONCLUSIONS: Social support is closely related to the caregiver burden on the primary caregivers of children with CP, and caregivers should strengthen their social support system to improve the quality of care for CP children.